Brain Balance

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Rett’s Disorder

 

While Rett’s Syndrome falls under the umbrella categorization of PDD this syndrome is not typically a disorder addressed by our program. However every child is an individual and each case is assessed accordingly.

 

 

The following information was provided by National Dissemination Center for Children with Disabilities (NICHCY) which can be located at www.nichcy.org/resources/rett.asp

 

 

What is Rett’s Syndrome?

 

The DSM diagnostic criteria for Rett Syndrome. www.autism-society.org/site/PageServer?pagename=PDD#rett Without explanation or elaboration, here's the criteria for Rett Syndrome as it appears in the DSM-IV-TR.

 

Contrast DSM criteria for Rett's with the other PDD disorders. www.nichcy.org/pubs/factshe/fs20txt.htm NICHCY offers a briefing paper on PDD that includes an overview to the umbrella category under which mental health professionals have placed Rett Syndrome. This includes the DSM criteria that are used to diagnose the disorder. You may also find it helpful to see these criteria contrasted with those used to diagnose the four other disorders under the PDD umbrella.

Did you know there's another set of criteria? www.rettsyndrome.org/main/diagnostic_criteria.htm The International Rett Syndrome Association (IRSA) convened a panel of experts in 2001. One of their aims was to establish as simple a data set as possible to assist physicians in making the clinical diagnosis of RS. The meeting resulted in an updated set of diagnostic/clinical criteria, which are described at the link above.

RS101: Introduction to Rett Syndrome. www.rettsyndrome.org/main/toc-what-is-rett-syndrome.htm Dive in deep at the International Rett Syndrome Association. Here, you can read all about this disability, including characteristics, stages of the disorder, diagnosis, treatment, and education. You can also find state and local chapters who can help you in your neck of the woods. You want info on RS?

About RS. www.rsrf.org/about_rett_syndrome/ Rett Syndrome Research Foundation (RSRF) offers "About Rett Syndrome" as well as information about diagnosis and the gene found to be involved in RS.

What does the National Institute of Neurological Disorders and Stroke have to say about Rett Syndrome? www.ninds.nih.gov/disorders/rett/detail_rett.htm The link above will lead you to NINDS' page on Rett Syndrome, where you can read an overview of the disability, find links to helpful organizations, and learn about research studies being conducted by NINDS.

From the medical encyclopedia at Medline Plus. www.nlm.nih.gov/medlineplus/ency/article/001536.htm Read Medline's description of RS, including definition, causes, risk factors, symptoms, signs and tests, treatment, prognosis, and complications. Medline is a service of the National Library of Medicine.

Want to know more about the DSM-IV-TR, and how it was compiled? www.appi.org/dsm.cfx Visit the American Psychiatric Association's DSM-IV-TR Library, located at the link above.